August 2015

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By Angelina Castleberry When my twins were born, I lived at the NICU. I was there about 18 hours a day. For the first four weeks, it was my home. But after the first month, I had to finally go home and “snap out of it.” I had to come to terms with the fact that my babies weren’t coming home with me anytime soon. I had to remember and realize that I have four other children at home waiting on me, depending on me and needing me. So I left. I went home. I would make arrangements to be at the NICU either every otherRead More →

By Jacquline Terry via The Mighty After I received my daughter Jasmine’s diagnosis of urea cycle disorder (UCD), the first thing I thought was, “Great, now I know what’s wrong with her and we can fix this.” But I also panicked: “Oh my gosh… I have a kid with a medical condition.” People might tell you it’s great to have a diagnosis, but then they go on with their lives and what do you do? Yes, I have a “diagnosis,” but now what? What’s going to happen? What am I going to do? How will this affect our lives? How do I tell my family and friends? HowRead More →