Sage was born on November 20th, 2014, he was a 7 pound 15 ounce 20 inch long beautiful baby boy. The doctors sent my placenta away for testing since his kidneys were a little big on an ultrasound and found storage vacuoles. They told me that he had a ‘special rare disease’ some are not so serious and others are deadly so we need to talk about quality and longevity of life. Wait, what?! After I was discharged from the hospital they sent us to Children’s Hospital of Pittsburgh for genetic testing, we were there for the first week of his life. They finally told us he has GM1 Gangliosidosis and most children do not live past 2 years old. He was only 2 months old at this point. So I searched and searched for a way to save my baby and I found Genistein, which he is no longer taking due to a nationwide shortage, and a clinical trial at the university of Minnesota which we did not end up taking part in. I found out about Genistein through Sage’s genetic therapist at Children’s Hospital of Pittsbugh, she mentioned it when I said I wanted to do an Enzyme Replacement Therapy for him. I didn’t know that didn’t exist yet. She told me that other parents have tried it and some said it really helped and other say they didn’t notice a difference. The only side effect I was told would be an upset stomach (I haven’t noticed it) There isn’t a lot of research on Genistein and GM1 so I just trusted that this soy concentrate would help my baby.